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5 Things I’d Tell Anyone With Young-Onset Parkinson’s (YOPD)
Before I get into this, I want to be honest about something. I was diagnosed with Parkinson’s at 55. The definition of young-onset Parkinson’s varies, with some organizations defining it as a diagnosis before age 50. So I’m not going to pretend that I have the exact same experience as someone diagnosed in their 30s or 40s. But I do know what it’s like to receive a Parkinson’s diagnosis while you’re still very active and thinking about the next several decades of your life. An
syellen63
Oct 56 min read


Newly Diagnosed With Parkinson’s? Take Time to Process, Then Take Your First Steps
Getting a Parkinson’s diagnosis is a gut punch. I imagine most people remember the moment they were told they have this incurable neurodegenerative disease. But that’s where the commonality ends. Every Parkinson’s journey is deeply personal and unique. For some, a diagnosis brings relief after years of unexplained symptoms or misdiagnoses. For others, it comes completely out of the blue. For me, it was the latter. I was 55, healthy and fit, aside from a slight tremor in my le
syellen63
Aug 115 min read


What Does it Mean to be Living Parkinson's?
When people are diagnosed with Parkinson’s, the first questions are often medical: What medication will I need? What symptoms should I expect? Those are important questions—but they’re only part of the picture. Parkinson’s is not something you manage only in a doctor’s office. It’s something you live with every day, and how you live with it matters. That realization is what led me to write Living Parkinson’s. The book is built around practical strategies that help people move
syellen63
Jan 213 min read


Wellness and Parkinson's Disease
Living well with Parkinson’s requires more than medication and doctor appointments — it demands a wellness approach that supports the whole person. Because Parkinson’s affects people living with the disease in so many ways, we need every advantage we can get. Wellness, at its core, means pursuing the mental, physical and emotional balance that helps you operate at your best. A strong foundation can improve energy, movement, sleep, resilience and overall quality of life. From
syellen63
Nov 18, 20254 min read
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